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METACHROMATIC LEUKODYSTROPHY

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Anonymous donor to match donations to help save 3-month-old boy from rare genetic disorder

Read full article: Anonymous donor to match donations to help save 3-month-old boy from rare genetic disorder

If there’s anything to know about the Rasberry family, it is that they’re a team with a lot of love. “The big kids literally dote on them ... always trying to hug and kiss them, especially with Addi,” Victoria Rasberry said. “Then, around 15 months old, she started walking funny,” Victoria Rasberry said. “It was one of the worst phone calls of my life,” Victoria Rasberry said. We need to save our son,” Victoria Rasberry said.

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Family raising money in effort to save 3-month-old son from rare genetic disorder

Read full article: Family raising money in effort to save 3-month-old son from rare genetic disorder

The family is hoping to raise money for an experimental gene therapy treatment in Italy to save his life. If there’s anything to know about the Rasberry family, it is that they’re a team with a lot of love. “The big kids literally dote on them ... always trying to hug and kiss them, especially with Addi,” Victoria Rasberry said. “It was one of the worst phone calls of my life,” Victoria Rasberry said. We need to save our son,” Victoria Rasberry said.